Record #:
ONT00088
Last Full Update:
07 Aug 2024
Agency Information
| Legal Status |
(50) Non Profit |
| Primary Executive |
Durhane Wong-Rieger, President and Chief Executive Officer |
| Funding |
Private - Donations and memberships |
Description and Service Details
| Description (Service) |
National advocacy network for people and for organizations representing people with rare disorders * general information and resources
Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases |
| Areas Served |
Canada |
| Boundaries |
Canada |
| Eligibility |
Patients with rare disorders and their families, patient organizations and corporate leaders |
| Application |
Visit website for memberships |
| Languages |
English |
Site Information
| Site Location |
Toronto (Old Toronto) |
| Located In Community |
Toronto Downtown Central |
| Address & Map |
|
| Intersection |
Avenue Rd and Bloor St W |
| Physical Access |
Fully Accessible |
Categories and Classification
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