Canadian Organization for Rare Disorders
Record #: ONT00088 | Last Full Update: 29 Jul 2021 |
Contact Information | |
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Office Phone | 416-969-7464 |
Toll Free Phone | 1-877-302-7273 |
Fax | 416-969-7420 |
info@raredisorders.ca | |
Website | www.raredisorders.ca |
Agency Information | |
Legal Status | (50) Non Profit |
Primary Executive | Durhane Wong-Rieger, President and Chief Executive Officer |
Funding | Private - Donations and memberships |
Description and Service Details | |
Description (Service) | National advocacy network for people and for organizations representing people with rare disorders * general information and resources Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases |
Areas Served | Canada |
Boundaries | Canada |
Eligibility | Patients with rare disorders and their families, patient organizations and corporate leaders |
Application | Visit website for memberships |
Languages | English |
Site Information | |
Site Location | Toronto (Old Toronto) |
Located In Community | Toronto Downtown Central |
Address & Map | |
Intersection | Avenue Rd and Bloor St W |
Physical Access | Fully Accessible |
Categories and Classification | |
Service Categories | Health Related Advocacy Groups ~ Orphan Diseases ; Support Group Clearinghouses ~ Orphan Diseases |