Services may be impacted in response to COVID-19. Please contact organizations listed here prior to visiting in person to receive the most current service information.

Canadian Organization for Rare Disorders

Add Record Add Record | Suggest Update | Français | Suggest New Volunteer Opportunity | Print Version (New Window) | PDF (New Window)
Share:
Record #: ONT00088 Last Full Update: 29 Jul 2021
Contact Information
Office Phone 416-969-7464
Toll Free Phone 1-877-302-7273
Fax 416-969-7420
E-Mail info@raredisorders.ca
Website www.raredisorders.ca
Agency Information
Legal Status (50) Non Profit
Primary Executive Durhane Wong-Rieger, President and Chief Executive Officer
Funding Private - Donations and memberships
Description and Service Details
Description (Service) National advocacy network for people and for organizations representing people with rare disorders * general information and resources

Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases
Areas Served Canada
Boundaries Canada
Eligibility Patients with rare disorders and their families, patient organizations and corporate leaders
Application Visit website for memberships
Languages English
Site Information
Site Location Toronto (Old Toronto)
Located In Community Toronto Downtown Central
Address & Map
151 Bloor St W, Suite 600
Toronto, ON M5S 1S4
 
View Google Map
Intersection Avenue Rd and Bloor St W
Physical Access Fully Accessible
Categories and Classification
Service Categories Health Related Advocacy Groups ~ Orphan Diseases ; Support Group Clearinghouses ~ Orphan Diseases

Any omissions are unintentional and HIP disclaims any liability for unauthorized use or reproduction of any portion of this site. For a complete copyright and license statement please refer to our Terms of Use.