Canadian Organization for Rare Disorders

Contact Information

Office Phone 416-969-7464
Toll Free Phone 1-877-302-7273
Fax 416-969-7420

Agency Information

Legal Status (50) Non Profit
Primary Executive Durhane Wong-Rieger, President and Chief Executive Officer
Funding Private - Donations and memberships

Description and Service Details

Description (Service) National advocacy network for people and for organizations representing people with rare disorders * general information and resources

Proposes national strategies for preventive services, treatments, evidence-informed care, enhanced community supports, sustainable access to therapies, and dedicated research * organizes Rare Disease Day to raise awareness about rare diseases
Areas Served Canada
Boundaries Canada
Eligibility Patients with rare disorders and their families, patient organizations and corporate leaders
Application Visit website for memberships
Languages English

Site Information

Site Location Toronto (Old Toronto)
Located In Community Toronto Downtown Central
Address & Map
151 Bloor St W, Suite 600
Toronto, ON M5S 1S4
View Google Map
Intersection Avenue Rd and Bloor St W
Physical Access Fully Accessible

Categories and Classification

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