Huntington Society of Canada

Site: Central ON Resource Centre

Service: Family Services

Record #: OAK2493
Last Full Update: 04 Aug 2023

Contact Information

Office Phone Toll free 1-800-998-7398
Social Media Facebook Facebook, Instagram Instagram, LinkedIn LinkedIn, Twitter Twitter, YouTube YouTube
Primary Contact Muna Young, Director, Central Ontario Resource Centre; Phone: 1-800-998-7398 ext 201; Email:
Contact Form

Agency Information

Description (Agency)

A not-for-profit charitable organization which raises funds to deliver individual and group support services to individuals and families living with Huntington disease (HD) and to fund medical research to delay or stop the progression of the disease.

Legal Status (50) Non Profit
Established 1973
Primary Executive Angèle Bénard, National Director, Family Services; Phone: 519-749-7063 ext 132; Email:
Alternate Executive Pamela Lee, Administrative Assistant; Phone: 519-749-8491 ext 128; Email:
Funding Fundraising ; Donations

Description and Service Details

Description (Service)

The Family Services team is composed of registered social workers and professionals who provide support to individuals and families affected by HD

  • offers support and services to all people affected by HD
  • services include information and education, referrals to community resources and individual advocacy 

Also offers education and support to health, social service and community workers, and collaborates with other service providers to improve and expand existing services as well as increase awareness and understanding of HD and support for advocacy 
Online Resources:


Not specified


For upcoming events, please visit:

Areas Served Halton Region ; Hamilton ; Niagara Region ; Peel Region
Eligibility Individuals and families living with Huntington disease as well as the professionals and friends who support them
  • Online resources - no application required
  • Support groups - see website for details
Languages English
Fees None

Site Information

Site Location Mailing Address
Located In Community Waterloo
Address & Map
Niagara Region, ON
View Google Map
Mailing Address c/o Huntington Society of Canada 
20 Erb St W, Suite 801 
Waterloo, ON N2L 1T2
Physical Access Not Applicable - Mailing Address

Agency Overview

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