EDS Foundation

Site: Oakville

Record #: MHH0510
Last Full Update: 28 Nov 2025

Contact Information

Toll Free Phone

1-833-452-3371 (1-833-ILC-EDS1)
Fax 1-888-327-7853
E-Mail contactus@edscanada.org
Website https://edscanada.org/
Social Media Facebook Facebook, Instagram Instagram, LinkedIn LinkedIn
Primary Contact Hannah Raposo, Communications Coordinator; Email: media@EDSCanada.org
Alternate Contact Tammy Stadt, Education, Wellness, and Resource Director; Email: T.Stadt@EDSCanada.org

Agency Information

Legal Status (50) Non Profit
Established 2010
Primary Executive Sandy Smeenk, Director; Email: S.Smeenk@EDSCanada.org
Funding Donations * Membership

Description and Service Details

Description (Service)

Registered charitable foundation providing help to those living with Ehlers-Danlos Syndromes (EDS) and related conditions, including chronic pain

Services include:

  • providing press kits which include quick links to basic information about the conditions, a layperson’s glossary, basic fact sheets and information about the EDS Canada Foundation
  • virtual support groups * advanced registration for each session is required * registration fee of $10 * support groups do not intend to replace individual professional care
  • wellness support sessions for those with EDS, Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other heritable connective tissue disorders 
  • pain, advocacy and educational resources
  • crisis lines and mental health resources, including Suicide Crisis Helpline: 9-8-8
  • agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain
  • fund research to find cures through student grants and knowledge dissemination partnerships
Areas Served Durham Region ; Halton Region ; Peel Region ; Toronto ; York Region
Boundaries Halton Region, Peel Region, and Greater Toronto Area
Eligibility

No restrictions
Application

Call, email or visit the website for more information
Languages English
Fees None

Site Information

Site Location Oakville (Queen Elizabeth)
Located In Community Oakville
Address & Map
700 Third Line, Suite 136
Oakville, ON L6L 4B1
Intersection Third Line and Wyecroft Rd
Physical Access Fully Accessible

Categories and Classification

HCSD Main Heading Disabilities
HCSD Sub Heading Disability Associations
Service Categories Disease/Disability Information ~ Collagen Disease ; Disease/Disability Information ~ Ehlers-Danlos Syndrome ; Disease/Disability Information ~ Pain ; Pain Management ; Peer to Peer Networking ~ Collagen Disease ; Peer to Peer Networking ~ Ehlers-Danlos Syndrome ; Peer to Peer Networking ~ Pain ; Voluntary Health Organizations ~ Ehlers-Danlos Syndrome

Copyright

Copyright Information This listing is copyright © 2025 Ontario Health atHome