EDS Foundation

Site: Oakville

Record #: MHH0510
Last Full Update: 15 Jul 2024

Contact Information

Toll Free Phone 1-833-452-3371 (1-833-ILC-EDS1)
Fax 1-888-327-7853
E-Mail contactus@ILCEDSCanada.org
Website www.theilcfoundation.org/
Social Media Facebook Facebook, Instagram Instagram, LinkedIn LinkedIn
Primary Contact Hannah Raposo, Communications Coordinator; Email: media@ILCEDSCanada.org

Agency Information

Legal Status (51) Registered Charity
Established 2010
Primary Executive Sandy Smeenk, Director; Email: S.Smeenk@ILCEDSCanada.org
Alternate Executive Jacqui Raposo, Executive Director; Email: J.Raposo@ILCEDSCanada.org
Funding Donations * Membership

Description and Service Details

Description (Service)

Registered charitable foundation providing support to children and families with chronic pain

Services include:

  • virtual support groups
  • wellness support sessions for those with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other Heritable Connective Tissue Disorders 
  • pain and educational resources
  • crisis lines and mental health resources
  • agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain
  • academic and research partnerships
Hours

Mon-Fri 9am-5pm
Dates

Peer events are held monthly at various locations * call or visit the website to learn about and participate in upcoming events
Meetings

Support sessions are about one-hour long * advanced registration is required * 18 participants per week are the maximum * Zoom link will be sent to members one week before each session * support groups do not replace professional care
Areas Served Halton Region ; Peel Region
Eligibility No restrictions
Application

Call, email or visit the website for more information
Languages English
Fees None

Site Information

Site Location Oakville (Queen Elizabeth)
Located In Community Oakville
Address & Map
700 Third Line, Suite 136
Oakville, ON L6L 4B1
Intersection Third Line and Wyecroft Rd
Physical Access Partially Accessible

Categories and Classification

HCSD Main Heading Disabilities
HCSD Sub Heading Disability Associations
Service Categories Disease/Disability Information ~ Collagen Disease ; Disease/Disability Information ~ Ehlers-Danlos Syndrome ; Disease/Disability Information ~ Pain ; Pain Management ; Peer to Peer Networking ~ Collagen Disease ; Peer to Peer Networking ~ Ehlers-Danlos Syndrome ; Peer to Peer Networking ~ Pain ; Voluntary Health Organizations ~ Ehlers-Danlos Syndrome

Copyright

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