EDS Foundation

Site: Oakville

Add to List Suggest Update Print Version (New Window)

Record #: MHH0510

Last Full Update: 28 Nov 2025

Contact Information

Toll Free Phone	1-833-452-3371 (1-833-ILC-EDS1)
Fax	1-888-327-7853
E-Mail	contactus@edscanada.org
Website	https://edscanada.org/
Social Media	Facebook, Instagram, LinkedIn
Primary Contact	Hannah Raposo, Communications Coordinator; Email: media@EDSCanada.org
Alternate Contact	Tammy Stadt, Education, Wellness, and Resource Director; Email: T.Stadt@EDSCanada.org

Agency Information

Legal Status	(50) Non Profit
Established	2010
Primary Executive	Sandy Smeenk, Director; Email: S.Smeenk@EDSCanada.org
Funding	Donations * Membership

Description and Service Details

Description (Service)	Registered charitable foundation providing help to those living with Ehlers-Danlos Syndromes (EDS) and related conditions, including chronic pain Services include: providing press kits which include quick links to basic information about the conditions, a layperson’s glossary, basic fact sheets and information about the EDS Canada Foundation virtual support groups * advanced registration for each session is required * registration fee of $10 * support groups do not intend to replace individual professional care wellness support sessions for those with EDS, Hypermobility Spectrum Disorder (HDS), and its related conditions including chronic pain or other heritable connective tissue disorders pain, advocacy and educational resources crisis lines and mental health resources, including Suicide Crisis Helpline: 9-8-8 agency cannot provide medical or pharmaceutical advice and does not endorse any one method of treatment for people suffering from chronic pain fund research to find cures through student grants and knowledge dissemination partnerships
Areas Served	Durham Region ; Halton Region ; Peel Region ; Toronto ; York Region
Boundaries	Halton Region, Peel Region, and Greater Toronto Area
Eligibility	No restrictions
Application	Call, email or visit the website for more information
Languages	English
Fees	None

Site Information

Site Location	Oakville (Queen Elizabeth)
Located In Community	Oakville
Address & Map	700 Third Line, Suite 136 Oakville, ON L6L 4B1 View Google Map
Intersection	Third Line and Wyecroft Rd
Physical Access	Fully Accessible

Categories and Classification

HCSD Main Heading	Disabilities
HCSD Sub Heading	Disability Associations
Service Categories	Disease/Disability Information ~ Collagen Disease ; Disease/Disability Information ~ Ehlers-Danlos Syndrome ; Disease/Disability Information ~ Pain ; Pain Management ; Peer to Peer Networking ~ Collagen Disease ; Peer to Peer Networking ~ Ehlers-Danlos Syndrome ; Peer to Peer Networking ~ Pain ; Voluntary Health Organizations ~ Ehlers-Danlos Syndrome

Copyright

Any omissions are unintentional and HIP disclaims any liability for unauthorized use or reproduction of any portion of this site. For a complete copyright and license statement please refer to our Terms of Use.